I'm not very good at this internet stuff- shopping and facebook are my usual limits, so sorry if this takes a while to get going!
So, I've been accepted onto the lung transplant waiting list and not sure what to do now really! I know all the information that the hospital give you, what I don't know is what it's like to be a young person waiting for and going through a transplant! There are so many questions and things that I don't feel anyone else really understands. I live in a small island where only a few people have had transplants and really want to make some friends in similar positions to me.
Although I've always struggled with asthma and breathlessness, I lived a normal life until a year ago, when suddenly my lung function dropped dramatically as did my weight and I've spent a year unable to walk and even bath without some assistance. I also started having panic attacks which don't mix too well with a lung condition! Not much fun and a big shock. I fought needing the transplant for quite a while and have now realised that I am lucky to get the chance to get back to a normal life. I am very glad that I haven't spent years in this condition and very much hope I won't spend too much longer, although I have a huge task ahead of me!
I started to look on the internet for people like me and have found huge comfort in reading about their lives and journeys to and through transplant. Their honesty has been so comforting to me and I hope that one day my blog will provide inspiration to others, the way these have for me.
So, would love to hear from people